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National Organization for Rare Disorders | NORD
https://rarediseases.org/
WEB4 days ago · National Organization for Rare Disorders. NORD advances practical, meaningful, and enduring change so people with rare diseases can live their fullest and best lives. Every day, we elevate care, advance research, and drive policy in a purposeful and holistic manner to lift up the rare disease community. website
website
DA: 54 PA: 21 MOZ Rank: 82
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List of Rare Diseases | A-Z Database | NORD
https://rarediseases.org/rare-diseases/
WEBWith more than 1,200 rare disorders, you can explore rare disease reports that include information on symptoms, causes, treatments, clinical trials, and sources of help such as patient advocacy organizations. website
website
DA: 72 PA: 1 MOZ Rank: 59
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Home - Genetic and Rare Diseases Information Center
https://rarediseases.info.nih.gov/
WEBDiscover how the Genetic and Rare Diseases Information Center Website and Contact Center can help patients and families who have a rare disease. Registration for this year's Rare Disease Day at NIH is now open!
DA: 63 PA: 33 MOZ Rank: 32
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Diseases - Genetic and Rare Diseases Information Center
https://rarediseases.info.nih.gov/diseases/
WEBBrowse by Disease. Explore GARD's list of rare diseases. Filter by category or search by disease name, acronym, or synonym. Rare diseases found on GARD should not be used as policy statements of NCATS or the NIH. website
website
DA: 81 PA: 87 MOZ Rank: 18
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About - Genetic and Rare Diseases Information Center
https://rarediseases.info.nih.gov/about/
WEBA rare disease is a disease or condition that impacts fewer than 200,000 people in the U.S. There are more than 10,000 known rare diseases that affect about 1 in 10 people (or 30 million people) in the U.S., according to the Orphan Drug Act. Other countries may have their own official definitions of a rare disease.
DA: 22 PA: 51 MOZ Rank: 12
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EveryLife Foundation for Rare Diseases
https://everylifefoundation.org/
WEBMar 28, 2024 · We empower the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments, and cures.
DA: 24 PA: 58 MOZ Rank: 89
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About Us - National Organization for Rare Disorders
https://rarediseases.org/about-us/
WEBFirst and Only. NORD was first national nonprofit to represent all individuals and families affected by rare disease. Today we’re the only organization working at the intersection of care, research, policy and community for all rare diseases. How We Do It. Care. For many, we are a first step toward hope, action, and progress.
DA: 95 PA: 68 MOZ Rank: 50
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What are Rare Diseases?
https://www.rarediseasesnetwork.org/about/what-are-rare-diseases
WEBHow rare is rare? In the United States, the Food and Drug Administration (FDA) defines a rare disease as any disease that affects fewer than 200,000 Americans. In Europe, a disease is defined as rare when it affects less than 1 in 2,000 people.
DA: 87 PA: 12 MOZ Rank: 30
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Home | Rare Diseases Clinical Research Network
https://www.rarediseasesnetwork.org/
WEBRare Diseases Clinical Research Network. A National Institutes of Health-funded research network working toward faster diagnosis and better treatments for people living with rare diseases. Learn More. Find diseases we study. Learn about studies underway. Connect with patient advocacy groups. Visit our consortia. Read our research. Who We Are.
DA: 91 PA: 25 MOZ Rank: 63
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RareAction Network
https://rareaction.org/
WEBThe RareAction Network®, powered by the National Organization for Rare Disorders (NORD), serves to connect and empower a unified network of individuals and organizations with tools, training and resources to become effective advocates for rare diseases through national and state based initiatives across the United States.
DA: 70 PA: 28 MOZ Rank: 17
